Here are some recipes he likes
Lamb Kofta
1 lb lamb
chopped onion
minced garlic
chopped mint
cumin
paprika
salt
pepper
roll into balls and bake
date and nut balls
1/2 cup of pumpkin seeds
2 cups pitted organic medjool dates
1 cup of organic unsulfited apricots
2 tbl oil (coconut, safflower)
1 tbl water
pinch salt
pulse the seeds in a food processor until they are finely ground
add remaining ingredients and pulse until mixture holds together
roll the mix into little balls and coat them with cocoa, coconut or sesame seeds
He's loving all the meat I got from the Kawartha Ecological Growers Co-op, especially the chicken and lamb
His supplements include:
mB12 ever 2 nights
3-5ml ProEFA every night
5-10drops Sanum Pleofort every night
1st juice (1/4 juice and 3/4 water with stevia)
digestive enzyme
1/2 vit C
1/4 taurine
1 vit D
1 Cal/Mag/Pot/Zinc
2nd juice (same dilution as above)
3 Natren probiotics
1 Culturelle
Final Juice
1 3mg melatonin
1 culturelle
1/2 vit C
1/4 taurine
I'm going to trial more things this month:
folic acid
CoQ19
B6
DMG
Thursday, July 28, 2011
Joy and Pain
Lots of joyful momments over the past few weeks.
When I kept him home from camp due to illness or appointments, he asked to go to 'school'. He loves the place now and doesn't want to miss out by being absent. Today was the end of the July session, and parents were invited. It was amazing to watch him participate, play independantly, and sit through circle and a sing a long! He was so engaged and animated when Robin played guitar, he sang along! He wasn't clingy or needy. I couldn't believe it. This kid ran screaming from ANY vocal music up until now. I credit the school for running an exceptional program, with a monthly calender, and a daily visual schedule to manage transitions. Plus, being aware of how yelling and loud music can disturb kids on the spectrum. The outdoor play time was cancelled due to rain, and he didn't protest. He just walked over to me and asked where rain comes from. The first preschool he attended in September was one giant meltdown. They had indoor play time due to rain and he completely lost it, and never really recovered resulting in us pulling him out of that school.
The sensory issues (sound sensitivity, vestibular or balance, tactile defensiveness and proprioceptive seeking) are also being resolved through biomedical treatment our Occupational Therapist noticed great improvements at his last appointment.
We had our second visit with our Naturopath, Dr. Scott Clack. He does chelation with DMSA. I'm looking forward to chelation. It will bring about the next biggest 'wow' in Charlie's treatments. Dr. Clack follows the protocol developed by Andrew Cutler for mercury poisoning.
http://www.autismpedia.org/wiki/index.php?title=Protocols/Cutler
Another extremely joyful momment occured yesterday. Dr. Clack was doing allergy testing, and he is not sensitive to gluten or goat and sheep milk. I celebrated by going to Big Carrot and buying a loaf of multigrain bread, and some goat brie. Today we went out for lunch at Banjara, and I let him have Roti. I can handle a cow dairy allergy. I don't handle cow's milk well. The only sad news is that he has a coconut, corn and soy allergy. That means no more coconut ice cream! I'll have to find some goat and sheep ice cream for home. Funny co-incidence. Sheep ice cream was the first he'd ever tried as a baby at the Dufferin Grove market.
Joy is everytime he uses the toilet to pee or poop. Which is about 50|% of the time now. Things are improving, slowly, but progress is happening!
Joy is listening to him sing along to his favorite music, and flip through a book and pretend to read it.
Joy was spending some one on one time with him yesterday and noticing how much more independent and mature he is.....as long as his sister isn't around;-)
Pain has been the hour long meltdowns he's been having at the end of the day before Dan comes home. Its been traumatic and exhausting for everyone. I have no choice but to lock Clara and I in my bedroom while he screams and rants and raves and crashes and bangs. He seems to unravel once we get home and it is really out of control.
I'm ready to consider behavior therapy. I don't want to sign him up for 12 hours of ABA, but I think its time to support biomedical with behavior therapy.
I spoke with a woman who does RDI (Relationship Development Intervention), and after a very long chat, where she offered no real advice that I haven't already tried, and ended up blaming his behavior on school, and suggested home schooling. School is his anchor in the day. It provides structure and just enough stimulation to prevent boredom and acting out, but not so much stimulation that his senses are overwhelmed. School is where he is learning social skills, at the minimum he is learning to co-exist with other children without ripping their faces off.
School has to stay, and if a therapist suggests that school is the culprit, I will run away.
I met an ABA therapist at the Storefront today. She seemed very knowledgable, very skilled and expereinced and very efficient. The only concern I have was her lack of knowledge of biomedical treatments, and her rush to judge them. His other therapists and teachers are not so quick to dismiss my efforts in managing his diet and supplements.
Which brings me to his new supplement regime:
I've managed to reduce the juice to 1/4 and 3/4 filtered water with 1/2 dropper of stevia. We are goin g through so much less juice, he's getting much less sugar, and much more water. This will help with his Yeast overgrowth.
I picked up the homeopathic yeast fighter, Pleo Fort by Sanum. After a 4 hour tantrum last Friday, I got REALLY motivated to take things to the next level. I read most of Julie Buckley's book
http://www.juliebuckley.com/
According to her approach, the next step after diet, is YEAST. Stop feeding it with sugar and simple carbs, and start killing it. He wouldn't take grapefruit seed extract or oregano oil. I loaded up on yeast stuff at Supplements Plus. Olive Leaf, Pepperment oil, Pleo Fort, activiated charcoal, aloe vera juice.
After a few days of Pleo Fort, his oral thrush went away. He didn't have major meltdowns or complain of a headache until today. I noticed a spot of yeast on his tongue today. I'm going to be strict with the yeast treatment. no sugar, minimal refined carbs, lots of probiotics and some olive leaf and aloe vera juice. I wish I could give him prescription antifungals, nystatin and diflucan.
I went to his Pediatricians last week to ask for an audiologist and optometrist referral. I also asked for a requisition for the blood tests that Dr. Clack suggested. I got a bizare reaction. He lectured me, some highlights from that horrible appointment include:
"I'm not going to waste taxpayers money ordering these blood tests" "The only testing he needs is genetic testing". He spewed his limited nutrition knowledge. In the end he had no new usefull advice to offer. He suggested ABA through Surrey Place again...which Charlie does not qualify for as his Autism is not severe enough. He suggested a Developmental Pediatrician, to do genetic testing. However, he did not know where to find one. He suggested a chewable multivitamin with iron. Kids on the spectrum need LESS metals like iron, and do not need a multivitamin that is full of sugar, food colour and flavours. Plus Charlie is sensitive to B vitamins so multis are not suitable.
Western Medicine is useless when treating Autism.
I won't be going back to Dr. Goldback for Clara's 1 year check up. I'll wait till she is 2 to vaccinate with MMR. I CAN NOT go through this again with another child.
When I kept him home from camp due to illness or appointments, he asked to go to 'school'. He loves the place now and doesn't want to miss out by being absent. Today was the end of the July session, and parents were invited. It was amazing to watch him participate, play independantly, and sit through circle and a sing a long! He was so engaged and animated when Robin played guitar, he sang along! He wasn't clingy or needy. I couldn't believe it. This kid ran screaming from ANY vocal music up until now. I credit the school for running an exceptional program, with a monthly calender, and a daily visual schedule to manage transitions. Plus, being aware of how yelling and loud music can disturb kids on the spectrum. The outdoor play time was cancelled due to rain, and he didn't protest. He just walked over to me and asked where rain comes from. The first preschool he attended in September was one giant meltdown. They had indoor play time due to rain and he completely lost it, and never really recovered resulting in us pulling him out of that school.
The sensory issues (sound sensitivity, vestibular or balance, tactile defensiveness and proprioceptive seeking) are also being resolved through biomedical treatment our Occupational Therapist noticed great improvements at his last appointment.
We had our second visit with our Naturopath, Dr. Scott Clack. He does chelation with DMSA. I'm looking forward to chelation. It will bring about the next biggest 'wow' in Charlie's treatments. Dr. Clack follows the protocol developed by Andrew Cutler for mercury poisoning.
http://www.autismpedia.org/wiki/index.php?title=Protocols/Cutler
Another extremely joyful momment occured yesterday. Dr. Clack was doing allergy testing, and he is not sensitive to gluten or goat and sheep milk. I celebrated by going to Big Carrot and buying a loaf of multigrain bread, and some goat brie. Today we went out for lunch at Banjara, and I let him have Roti. I can handle a cow dairy allergy. I don't handle cow's milk well. The only sad news is that he has a coconut, corn and soy allergy. That means no more coconut ice cream! I'll have to find some goat and sheep ice cream for home. Funny co-incidence. Sheep ice cream was the first he'd ever tried as a baby at the Dufferin Grove market.
Joy is everytime he uses the toilet to pee or poop. Which is about 50|% of the time now. Things are improving, slowly, but progress is happening!
Joy is listening to him sing along to his favorite music, and flip through a book and pretend to read it.
Joy was spending some one on one time with him yesterday and noticing how much more independent and mature he is.....as long as his sister isn't around;-)
Pain has been the hour long meltdowns he's been having at the end of the day before Dan comes home. Its been traumatic and exhausting for everyone. I have no choice but to lock Clara and I in my bedroom while he screams and rants and raves and crashes and bangs. He seems to unravel once we get home and it is really out of control.
I'm ready to consider behavior therapy. I don't want to sign him up for 12 hours of ABA, but I think its time to support biomedical with behavior therapy.
I spoke with a woman who does RDI (Relationship Development Intervention), and after a very long chat, where she offered no real advice that I haven't already tried, and ended up blaming his behavior on school, and suggested home schooling. School is his anchor in the day. It provides structure and just enough stimulation to prevent boredom and acting out, but not so much stimulation that his senses are overwhelmed. School is where he is learning social skills, at the minimum he is learning to co-exist with other children without ripping their faces off.
School has to stay, and if a therapist suggests that school is the culprit, I will run away.
I met an ABA therapist at the Storefront today. She seemed very knowledgable, very skilled and expereinced and very efficient. The only concern I have was her lack of knowledge of biomedical treatments, and her rush to judge them. His other therapists and teachers are not so quick to dismiss my efforts in managing his diet and supplements.
Which brings me to his new supplement regime:
I've managed to reduce the juice to 1/4 and 3/4 filtered water with 1/2 dropper of stevia. We are goin g through so much less juice, he's getting much less sugar, and much more water. This will help with his Yeast overgrowth.
I picked up the homeopathic yeast fighter, Pleo Fort by Sanum. After a 4 hour tantrum last Friday, I got REALLY motivated to take things to the next level. I read most of Julie Buckley's book
http://www.juliebuckley.com/
According to her approach, the next step after diet, is YEAST. Stop feeding it with sugar and simple carbs, and start killing it. He wouldn't take grapefruit seed extract or oregano oil. I loaded up on yeast stuff at Supplements Plus. Olive Leaf, Pepperment oil, Pleo Fort, activiated charcoal, aloe vera juice.
After a few days of Pleo Fort, his oral thrush went away. He didn't have major meltdowns or complain of a headache until today. I noticed a spot of yeast on his tongue today. I'm going to be strict with the yeast treatment. no sugar, minimal refined carbs, lots of probiotics and some olive leaf and aloe vera juice. I wish I could give him prescription antifungals, nystatin and diflucan.
I went to his Pediatricians last week to ask for an audiologist and optometrist referral. I also asked for a requisition for the blood tests that Dr. Clack suggested. I got a bizare reaction. He lectured me, some highlights from that horrible appointment include:
"I'm not going to waste taxpayers money ordering these blood tests" "The only testing he needs is genetic testing". He spewed his limited nutrition knowledge. In the end he had no new usefull advice to offer. He suggested ABA through Surrey Place again...which Charlie does not qualify for as his Autism is not severe enough. He suggested a Developmental Pediatrician, to do genetic testing. However, he did not know where to find one. He suggested a chewable multivitamin with iron. Kids on the spectrum need LESS metals like iron, and do not need a multivitamin that is full of sugar, food colour and flavours. Plus Charlie is sensitive to B vitamins so multis are not suitable.
Western Medicine is useless when treating Autism.
I won't be going back to Dr. Goldback for Clara's 1 year check up. I'll wait till she is 2 to vaccinate with MMR. I CAN NOT go through this again with another child.
Wednesday, July 20, 2011
Goodbye day 3
We had a fantastic weekend. It started really badly. We had to pack up for a birthday party/beach picnic and overnight trip. When we were about to drive off, we noticced a flat tire. Our neighbour had a compressor, he inflated our tire so we could get to Canadian Tire to get it fixed. While at CT, he enjoyed riding the 2 wheelers. Time for trainig wheels. We also picked up an air matress and some pump guns, which made beach time really fun for him. His behavior was excellent. We went to a beach birthday party, he had no meltdowns and actually joined the kids during Happy Birthday and cupcakes. We made the cupcakes, so he was pretty invested and the party was outdoors, which helped minimize his auditory defensiveness and sensitivity to sound.
That night we drove to London for Day Out with Thomas and stayed at Four Points. He woke briefly in the hotel room, commented on the amount of pillows, and sedges off to sleep. He awoke at 7:30, happy and excited. I gave him a mB12 shot. We watched Hop. He really enjoyed it.
He was great all day at Day Out with Thomas. No meltdowns. I love day 1 after a shot. We picked up a stomach bug. Another mom thinks it was from the petting zoo. I was the most sick, Charlie suffered the least, maybe the first time in his life that we were all worse off. His immune system is coming back. We also went to the beach at Port Stanley on Sunday night.
For the stomach bug(could be giardia) I'm taking grapefruit seed extract 2-3 times a day, and oregano oil under my tongue. I'm also taking probiotics.
This afternoon (day 3) was horrible. He tantrumed most of the time at bowling. Lots of anxiety. He wouldn't bowl, just repeat phrases like 'I don't want to play pinball' and 'I don't want to go home'.
Once we got home he became terribly violent with Clara, he kept slamming he finger in drawers. I was worried for her safety. I locked the two of us in my bedroom and played music to drown out his violent tantrum that lasted for hours. I decided to give him another shot. He had 3 mb12 tablets, but they just don't compare to injections.
I was meeting Dan at 5pm at the Centre Island ferry docks. Within minutes of the injection, he became calm. He told me he loved me, and kept asking if I was feeling better. He had a wonderful night, going on rides and chasing seagulls. Not violent and initiating social contact with other kids.
I'm going to give him injections every 2 days. I can't go through the tantrums anymore. He is too strong, he is g
That night we drove to London for Day Out with Thomas and stayed at Four Points. He woke briefly in the hotel room, commented on the amount of pillows, and sedges off to sleep. He awoke at 7:30, happy and excited. I gave him a mB12 shot. We watched Hop. He really enjoyed it.
He was great all day at Day Out with Thomas. No meltdowns. I love day 1 after a shot. We picked up a stomach bug. Another mom thinks it was from the petting zoo. I was the most sick, Charlie suffered the least, maybe the first time in his life that we were all worse off. His immune system is coming back. We also went to the beach at Port Stanley on Sunday night.
For the stomach bug(could be giardia) I'm taking grapefruit seed extract 2-3 times a day, and oregano oil under my tongue. I'm also taking probiotics.
This afternoon (day 3) was horrible. He tantrumed most of the time at bowling. Lots of anxiety. He wouldn't bowl, just repeat phrases like 'I don't want to play pinball' and 'I don't want to go home'.
Once we got home he became terribly violent with Clara, he kept slamming he finger in drawers. I was worried for her safety. I locked the two of us in my bedroom and played music to drown out his violent tantrum that lasted for hours. I decided to give him another shot. He had 3 mb12 tablets, but they just don't compare to injections.
I was meeting Dan at 5pm at the Centre Island ferry docks. Within minutes of the injection, he became calm. He told me he loved me, and kept asking if I was feeling better. He had a wonderful night, going on rides and chasing seagulls. Not violent and initiating social contact with other kids.
I'm going to give him injections every 2 days. I can't go through the tantrums anymore. He is too strong, he is g
Friday, July 15, 2011
2nd week of camp
Second week of camp was a success. I forgot his mb12 shot Sunday night so he tantrumed Monday morning. He was in the car before I realized why he was so agitated. I carried him back into the house, laid him across my knees and gave him his shot. By the time we arrived at school, the screaming was over, eye cOntact was back and he was calm.
His first juice contains:
1/8 taurine
1 digestive enzyme
1 mb12 on day 2 and 3
1/2 vitC
1 cal/mag/zinc/pot
The second juice has:
Culturelle
HMF forte
I need to get an anti-fungal in him. I still haven't tried the grapefruit seed extract, I'm too afraid to wake him up. I'm going to try the homeopathic one. Whatever works at this point. He still has oral thrush.
Some tasty meals from this week included:
Date balls:
1/2 cup pumpkin seeds
2 cups organic medjool dates
1 cup organic dried apricots
2 table spoons coconut oil
A bit of hot water
This gets pulsed in the food processor until it forms a ball.
Then break off and roll balls in shredded coconut or cocoa.
YUM. The whole family loved them.
Next time I'll add ground flax to the mix.
I also made lamb koftas with the kawartha Mennonite ground lamb:
1 lb of lamb
1/2 onion diced
Handful of fresh mint chopped
2 garlic cloves minced
1 tbl cumin
1 ts paprika
Salt and pepper
I roll these into balls and broil/bake them at 400F.
Kids and adults approved.
He didn't go to camp today. I think we are all exhausted after a fou day work week. He slept in till 10 and she went down at noon and is still sleeping.
I scoped out some things to do with Clara on Eglington. The library is getting a little boring. There is a got swim at the Eglington pool on Tues and Thurs. In sept I might sign her up for Rainbow songs or a class at Becoming Maternity.
The butcher shops are excellent. Not so much the green grocers, harvest wagon too was overpriced and not any better than fiesta or the manning green grocer. Nortown foods has fantastic turkey. The Healthy Butcher makes great Chorizo. I was excited for bagels, but I only went to St Urbain once and was disappointed. The cravings for wheat and dairy are gone in me too. In fact I thought the cream cheese was gross. Clara prefers meat and veg to wheat now too.
His first juice contains:
1/8 taurine
1 digestive enzyme
1 mb12 on day 2 and 3
1/2 vitC
1 cal/mag/zinc/pot
The second juice has:
Culturelle
HMF forte
I need to get an anti-fungal in him. I still haven't tried the grapefruit seed extract, I'm too afraid to wake him up. I'm going to try the homeopathic one. Whatever works at this point. He still has oral thrush.
Some tasty meals from this week included:
Date balls:
1/2 cup pumpkin seeds
2 cups organic medjool dates
1 cup organic dried apricots
2 table spoons coconut oil
A bit of hot water
This gets pulsed in the food processor until it forms a ball.
Then break off and roll balls in shredded coconut or cocoa.
YUM. The whole family loved them.
Next time I'll add ground flax to the mix.
I also made lamb koftas with the kawartha Mennonite ground lamb:
1 lb of lamb
1/2 onion diced
Handful of fresh mint chopped
2 garlic cloves minced
1 tbl cumin
1 ts paprika
Salt and pepper
I roll these into balls and broil/bake them at 400F.
Kids and adults approved.
He didn't go to camp today. I think we are all exhausted after a fou day work week. He slept in till 10 and she went down at noon and is still sleeping.
I scoped out some things to do with Clara on Eglington. The library is getting a little boring. There is a got swim at the Eglington pool on Tues and Thurs. In sept I might sign her up for Rainbow songs or a class at Becoming Maternity.
The butcher shops are excellent. Not so much the green grocers, harvest wagon too was overpriced and not any better than fiesta or the manning green grocer. Nortown foods has fantastic turkey. The Healthy Butcher makes great Chorizo. I was excited for bagels, but I only went to St Urbain once and was disappointed. The cravings for wheat and dairy are gone in me too. In fact I thought the cream cheese was gross. Clara prefers meat and veg to wheat now too.
Saturday, July 9, 2011
Week 1 of camp a success!
He had a great first week at camp. We're calling it school, becuase he is signed up to attend in September. He has a momment of hesitation before entering the doors, but once he's inside, he doesn't look back. On Friday he waltzed in and approached a set of twins who were painting and said "Hi Guys!". Then he walked over to the teacher and gave her a big hug and asked her what they were doing.
He can theoretically attend this nursery school until grade 1, as they have an afternoon kindergarten program. I'm starting to think that Centennial's afternoon program won't be as helpful as Play and Learn, because he isn't around neurotypical children. He won't learn social communication or social skills from other kids further down the spectrum.
We now have a zero tolerance rule for aggression. This includes, pushing, hitting, spitting, throwing, crashing kids or their sandcastles. If he shows aggression, his bowling priveledge is removed for the day. If he is gentle at school, using his words, he gets to go bowling. He's been bowling at least once a day this week. On Thursday he went twice, once before and once after school. On Friday its half price, so the alley was busy. I paid attention to his scores for the first time. He played 5 games by himself, and his highest scores were 103, and 107. The lowest score was 85. His scores were better than all the other kids playing (about 20 kids in age rage 10-15). He's actually really good. We might be able to remove the bumpers. They have a Youth Bowling League on Saturday mornings starting in Sept. I think I'll sign him up.
Its really exciting to see him motivated to go to school and interested in a sport. Its certainly not my choice of school or hobby/sport. I'd prefer he went to a school closer to our home, with our friends. I'd prefer he picked up a hobby that I enjoy too. I'm really starting to dread bowling. However, I think he's really thriving with this new routine.
I've added back Gaba into the mix. I read about it again in Dr. Jepson's book and it does help to calm him down. Glutamates are turned into Gaba in neurotypical people, however, Charlie isn't able to produce his own Gaba, so he has an excess of glutamates, and a deficit of Gaba. This causes excitability. This is also why MSG is a big No No. Here is a book called 'exitotoxins:the taste that kills'. I'll have to read it.
http://www.amazon.com/Excitotoxins-Taste-Russell-L-Blaylock/dp/0929173252
Ex-ci'-to-tox-in: a substance added to foods and beverages that literally stimulates neurons to death, causing brain damage of varying degrees. Can be found in such ingredients as monosodium glutamate, aspartame (NutraSweet®), cysteine, hydrolyzed protein, and aspartic acid
I wonder how many neurons I fried working at Campbell Soup?
Yesterday I cooked the lamb shoulder from our freezer order of mennonite/grass fed meat. I marinated it with garlic, lemon, oil, salt and mint. Then I braised it with chicken broth. The kids loved it.
Tonight I cooked the rib steaks on the bbq. Yummy too. He also really liked the hamburgers I made from their ground beef. I might ask them if I could buy a few more pounds of ground beef.
He's toileting about half the time now. We've removed his diaper at home during the day. He still gets one for school and night. He protests, but he'll go. He has more control now.
His supplement schedule involves:
1/2 digestive enzyme
1/8 ts taurine
1/2vit C
mB12 on day 2 and 3
2-5ml fish oil at night
probiotics: culturelle and hmf forte
I love the morning after an mB12 shot. I wish everyday was like that. On Friday, at the end of Day 3 right before a shot, he loses eye contact, he starts to tantrum. He also gets diarrhea. I wonder if I should try to give him a shot every 2 days?
I picked up some cal/mag/zinc/potassium and oil of oregano and grapefruit seed extract. Tonight after his fish oil, I slipped a fewdrops of oregano oil in his mouth and he woke up, spitting and gagging. Ooops. That stuff is potent. I wonder if I can get it down another way? I'll try the grapefruit seed oil next, he might be able to handle that one while asleep.
I'm going to try the minerals tomorrow morning. I noticed his behavior and communication was excellent after having an epsom salt bath, which has magnesium in it. Magnesium gets the highest scores on the parental survey. Maybe I should put the oregano in his bath water?
I'm going to make up pamphlets and flyers and advertise the Gluten free/Casein free coaching service at select preschools and agencies and offices. Time to get back to work!
He can theoretically attend this nursery school until grade 1, as they have an afternoon kindergarten program. I'm starting to think that Centennial's afternoon program won't be as helpful as Play and Learn, because he isn't around neurotypical children. He won't learn social communication or social skills from other kids further down the spectrum.
We now have a zero tolerance rule for aggression. This includes, pushing, hitting, spitting, throwing, crashing kids or their sandcastles. If he shows aggression, his bowling priveledge is removed for the day. If he is gentle at school, using his words, he gets to go bowling. He's been bowling at least once a day this week. On Thursday he went twice, once before and once after school. On Friday its half price, so the alley was busy. I paid attention to his scores for the first time. He played 5 games by himself, and his highest scores were 103, and 107. The lowest score was 85. His scores were better than all the other kids playing (about 20 kids in age rage 10-15). He's actually really good. We might be able to remove the bumpers. They have a Youth Bowling League on Saturday mornings starting in Sept. I think I'll sign him up.
Its really exciting to see him motivated to go to school and interested in a sport. Its certainly not my choice of school or hobby/sport. I'd prefer he went to a school closer to our home, with our friends. I'd prefer he picked up a hobby that I enjoy too. I'm really starting to dread bowling. However, I think he's really thriving with this new routine.
I've added back Gaba into the mix. I read about it again in Dr. Jepson's book and it does help to calm him down. Glutamates are turned into Gaba in neurotypical people, however, Charlie isn't able to produce his own Gaba, so he has an excess of glutamates, and a deficit of Gaba. This causes excitability. This is also why MSG is a big No No. Here is a book called 'exitotoxins:the taste that kills'. I'll have to read it.
http://www.amazon.com/Excitotoxins-Taste-Russell-L-Blaylock/dp/0929173252
Ex-ci'-to-tox-in: a substance added to foods and beverages that literally stimulates neurons to death, causing brain damage of varying degrees. Can be found in such ingredients as monosodium glutamate, aspartame (NutraSweet®), cysteine, hydrolyzed protein, and aspartic acid
I wonder how many neurons I fried working at Campbell Soup?
Yesterday I cooked the lamb shoulder from our freezer order of mennonite/grass fed meat. I marinated it with garlic, lemon, oil, salt and mint. Then I braised it with chicken broth. The kids loved it.
Tonight I cooked the rib steaks on the bbq. Yummy too. He also really liked the hamburgers I made from their ground beef. I might ask them if I could buy a few more pounds of ground beef.
He's toileting about half the time now. We've removed his diaper at home during the day. He still gets one for school and night. He protests, but he'll go. He has more control now.
His supplement schedule involves:
1/2 digestive enzyme
1/8 ts taurine
1/2vit C
mB12 on day 2 and 3
2-5ml fish oil at night
probiotics: culturelle and hmf forte
I love the morning after an mB12 shot. I wish everyday was like that. On Friday, at the end of Day 3 right before a shot, he loses eye contact, he starts to tantrum. He also gets diarrhea. I wonder if I should try to give him a shot every 2 days?
I picked up some cal/mag/zinc/potassium and oil of oregano and grapefruit seed extract. Tonight after his fish oil, I slipped a fewdrops of oregano oil in his mouth and he woke up, spitting and gagging. Ooops. That stuff is potent. I wonder if I can get it down another way? I'll try the grapefruit seed oil next, he might be able to handle that one while asleep.
I'm going to try the minerals tomorrow morning. I noticed his behavior and communication was excellent after having an epsom salt bath, which has magnesium in it. Magnesium gets the highest scores on the parental survey. Maybe I should put the oregano in his bath water?
I'm going to make up pamphlets and flyers and advertise the Gluten free/Casein free coaching service at select preschools and agencies and offices. Time to get back to work!
Wednesday, July 6, 2011
Dr. Sears and Camp
After three different Naturopaths, we've settle on a supplement program that follows the Dr. Sears approach. With the exception of the multivitamin. I'm going to follow the vitamin recommendations of Dr. Bock. I also re-read the ARI booklet by Dr. James and the three highest scoring supplements according to the parental survey are DMG, vit b6 and magnesium. Those will be next.
Love adding a sublingual mb12 on day 3. His afternoon yesterday was awfull without it. Attacking every kid he sees, poopy diapers, spaced out, headache, anxious and sensory issues overwhelming. Mb12 just make his brain work.
He's going to an integrated day camp. Today was his second day, and so far, he's enjoying it. It's the best integrated preschool in the city. If they can't work with him, we're in trouble!
Love adding a sublingual mb12 on day 3. His afternoon yesterday was awfull without it. Attacking every kid he sees, poopy diapers, spaced out, headache, anxious and sensory issues overwhelming. Mb12 just make his brain work.
He's going to an integrated day camp. Today was his second day, and so far, he's enjoying it. It's the best integrated preschool in the city. If they can't work with him, we're in trouble!
Friday, July 1, 2011
Naturopath #3
I had an appointment with Dr. Clack on Wednesday. He has a clinic at Ontario HBOT. We reviewed the Organic Acids test results from Great Plains Labs. He's got yeast and clostridium defficient in vitC and b12.
His recommendation is to focus on killing yeast and clostridia. I'm giving him 2 capsules of Culturelle and 2 of Genestra HMF Forte every day. So far, amazing. He's pooping in the toilet, and they look healthy!!!
He suggested digestive enzymes with each meal. He is able to tolerate the Kirkman enzymes. He suggested folinic or 5MTHF. He reacted violently to Kirkman folinic. He tantrumed for hours.
He's doing very well with the following plan:
Mb12 injection every 3 nights
Sublingual mb12 on day 2 and 3 when the injection wears off
1/8 taurine
2 Genestra HMF forte
2 Culturelle
Kirkman digestive enzymes with food
1/2 capsule SISU ester C 2-3 times per day
3mg melatonin at night
I'm cutting out all refined sugar. KRISDA makes a Stevia and inulin for baking that replaces at 1:1. I'm going to Phase out juice. Once he learns to swallow pills I can totally cut it out. We are using a Britta water filter, I'm going to look into other filtration systems.
We are going camping tomorrow. On the way home we are stopping at a farm for a freezer order of meat. The beef is grass fed, antibiotic free. They also have an egg CSA.
I'm not going to do the vegetable CSA, just shop at Fiesta and the Manning green grocer.
I'm making an appointment with Dr. Bock in Rheinbeck NY. According to his books, he does a lot of testing and takes a very systematic approach. That's what Charlie needs, his sensitivities and immune system are so delicate right now.
I visited a school yyesterday, the principal was great, the teachers seemed really experienced and had a great attitude. The secretary is our neighbours daughter. I'm going to sign him up. I also want to sign him up at catholic school too as they will integrate him.
My plan is still to do French immersion, I have high hopes for a great recovery.
I went to visit the Natural Nutrition School yesterday. I'm excited, it's one night of lectures on Tuesday 6:30-9:30. One night of electives. Two year program. 14 case studies.
This morning I made quinoa and brown rice pancakes with blueberries, Ontario strawberries w/Stevia and pastured pork sausages.
Yum!
His recommendation is to focus on killing yeast and clostridia. I'm giving him 2 capsules of Culturelle and 2 of Genestra HMF Forte every day. So far, amazing. He's pooping in the toilet, and they look healthy!!!
He suggested digestive enzymes with each meal. He is able to tolerate the Kirkman enzymes. He suggested folinic or 5MTHF. He reacted violently to Kirkman folinic. He tantrumed for hours.
He's doing very well with the following plan:
Mb12 injection every 3 nights
Sublingual mb12 on day 2 and 3 when the injection wears off
1/8 taurine
2 Genestra HMF forte
2 Culturelle
Kirkman digestive enzymes with food
1/2 capsule SISU ester C 2-3 times per day
3mg melatonin at night
I'm cutting out all refined sugar. KRISDA makes a Stevia and inulin for baking that replaces at 1:1. I'm going to Phase out juice. Once he learns to swallow pills I can totally cut it out. We are using a Britta water filter, I'm going to look into other filtration systems.
We are going camping tomorrow. On the way home we are stopping at a farm for a freezer order of meat. The beef is grass fed, antibiotic free. They also have an egg CSA.
I'm not going to do the vegetable CSA, just shop at Fiesta and the Manning green grocer.
I'm making an appointment with Dr. Bock in Rheinbeck NY. According to his books, he does a lot of testing and takes a very systematic approach. That's what Charlie needs, his sensitivities and immune system are so delicate right now.
I visited a school yyesterday, the principal was great, the teachers seemed really experienced and had a great attitude. The secretary is our neighbours daughter. I'm going to sign him up. I also want to sign him up at catholic school too as they will integrate him.
My plan is still to do French immersion, I have high hopes for a great recovery.
I went to visit the Natural Nutrition School yesterday. I'm excited, it's one night of lectures on Tuesday 6:30-9:30. One night of electives. Two year program. 14 case studies.
This morning I made quinoa and brown rice pancakes with blueberries, Ontario strawberries w/Stevia and pastured pork sausages.
Yum!
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